Atypical Hemolytic Uremic Syndrome (aHUS) is a rare disease of complement dysregulation. Patients that receive a kidney transplant are at risk of recurrence after transplant and premature death. We study the medical profile of aHUS patients utilizing a national database. We seek to identify the natural course of patients with aHUS on the deceased donor wait list and identify complications after transplant. Dr. Siedlecki is the United States data coordinator contributing to a global registry of greater than 1,000 patients.
